Friend and colleague Debbi Adamkin, executive director of Florida Hemophilia Association and mother of a child with hemophilia with Laurie Kelley
Michelle Rice, director of public policy at National Hemophilia Foundation, addresses the 340+ families in attendence at the largest ever Washington Days!
New England Hemophilia Association (NEHA) members charge towards Capitol Hill!
NEHA members on the move
Laurie Kelley first catches up at the Capitol with long-time friend and chair of NHF, Jose de la Riva of Texas.
Laurie's been here as a tourist but this is her first Washington Days for hemophilia!
NEHA's first meeting with the aide of Laurie's representative, John Tierney of Salem, Massachusetts. L to R: Laurie, Diane Lima, Greg Price, Natasha, and Kevin Sorge (executive director, NEHA).
NEHA meets with Jim Gordon, senior policy advisor to Rep. Stephen Lynch, to discuss HR 460 (concerning tiers) and HTC funding. Jim is a great listener and engaged colleague!
Diane Lima makes an excellent presentation about her son's needs and the high cost of hemophilia.
NEHA team with Joe Kennedy III. We did not twist his arm to support HR 460!
With Robert Primus
Great idea: Diane Lima made laminated cards detailing her son's medical costs, as a Q&A, and left copies with each legislator we met! This bright idea spoke volumes.
Some of my favorite guys in hemophilia! Max on the far right is from New England; moving left, Reid and Warren from North Carolina.
Diane makes a point to Sara Schaumburg, legislative assistant to representative Ed Markey of Massachusetts.
Justin Levesque of Maine and Laurie share some laughs after a long day.
Laurie with EJ Villejos of Pennsylvania after the Capitol visit
Inside the Russell Senate Office building, waiting to meet Senator Elizabeth Warren
Laurie with Ryan Seeley of New York, in the bar after the long day
Cuddling Peyton Brush of Texas, who has hemophilia. His mom is one of LA Kelley Communications' writers.
Val Bias, CEO of NHF, advocate and long-time friend, with Laurie Kelley
The young guys with hemophilia did a marvelous job of advocating on the Hill!
Kyle Compton meets Chris Bombardier. Kyle was so taken with Brian of Zimbabwe's story (published on Facebook) that he wrote a letter to him. Chris kept Brian's photo with him on his historic climb just 10 days ago up Mt. Aconcagua in Argentina, and snapped a photo of him holding Brian's photo at the summit. These two compassionate guys just had to meet!
Happy birthday, Reid Coleman of North Carolina! Older than...?